Athlete Runs Marathon While Allergic to Sun

Emily Pearson, a dedicated athlete, has found a way to pursue her passion for running despite a rare genetic disorder that causes extreme reactions to sunlight. For years, her training was confined to early mornings or late nights, and she required full body coverage to avoid painful symptoms like burning and itching.

Pearson has overcome these challenges to complete eight half marathons and one full marathon, proving her mental fortitude. Her participation in a clinical trial for bitopertin through Mayo Clinic has been a game-changer.

Thanks to the new medication, Pearson can now run at any time of day, shedding the anxiety and bulky attire previously associated with sun exposure. She is training for Grandma's Marathon in Duluth, Minnesota, looking forward to enjoying the race alongside her loved ones.