What is Miller-Dieker Syndrome?

Miller-Dieker Syndrome is a rare neurological condition affecting brain development, impacting speech, motor skills, and cognitive abilities.

How does Lifelites technology help children?

Lifelites provides assistive and sensory technology like Eyegaze and Soundbeam, enabling seriously ill children to play, create, communicate, and connect with loved ones.

Who is the new Royal patron of Tŷ Hafan?

The Princess of Wales was announced as the new Royal patron of Tŷ Hafan Children's Hospice in South Wales.

Home / Lifestyle / Miracle Boy's World Unlocked by Tech

Miracle Boy's World Unlocked by Tech

1 Dec

•

Summary

Assistive technology allows a boy with a rare neurological condition to communicate.
Princess of Wales visited a children's hospice as its new Royal patron.
A Christmas appeal aims to raise funds for life-changing technology for ill children.

Thirteen-year-old Felix Forbes, who has the rare neurological condition Miller-Dieker Syndrome, has experienced a profound transformation thanks to Lifelites, a charity providing assistive technology. This technology, including tools like the Eyegaze and Soundbeam, has enabled Felix to communicate and connect with his family in ways previously thought impossible. His journey was highlighted during a visit by the Princess of Wales to Tŷ Hafan Children's Hospice in South Wales, where she was announced as the new Royal patron.

The Mirror's Christmas appeal, 'Unwrap the Magic of Christmas,' aims to raise vital funds for Lifelites. The charity works to provide seriously ill and disabled children with life-changing technology, empowering them to play, create, and communicate. Without this support, many children remain 'locked in their bodies,' their cognitive abilities unknown to their families. Lifelites strives to bridge this gap, offering moments of joy and connection that are often out of reach for those with complex medical conditions.