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Arthrogryposis Sufferer Finds Freedom in Digital Age Innovations
18 Nov
Summary
- Man with rare condition receives care 3 times daily but maintains independence
- Uses assistive tech like voice controls, motorized wheelchair to complete tasks
- Passionate about baseball, aims to visit all 30 MLB stadiums
On November 18, 2025, Kevin Sullivan, a 34-year-old Illinois resident, is opening up about his daily life with a rare condition called arthrogryposis multiplex congenita (AMC). AMC affects Sullivan's muscle tissue, leading to general weakness and limited range of motion in his arms and legs.
Despite needing caregivers to assist him three times a day, Sullivan has found ways to maintain his independence. He utilizes assistive technologies like voice-controlled devices, ankle-foot orthotics, and a highly advanced motorized wheelchair that can raise him to eye level. These tools allow Sullivan to complete tasks on his own and even run errands independently.
One of Sullivan's passions is baseball, and he aims to visit all 30 Major League Baseball stadiums, taking advantage of the accessibility features at these venues. He also enjoys the autonomy of having his own space, something he acknowledges he may not have had access to in earlier eras.
Though Sullivan's condition requires constant care and planning, he remains determined to live life to the fullest, embracing the technological advancements that have improved the quality of life for those with disabilities.
