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Girl's Christmas Miracles: Rare Dwarfism Battle
11 Dec
Summary
- Zarwa Kakar, 7, lives with geleophysic dysplasia, a rare dwarfism.
- Her airway is too small, making breathing extremely difficult.
- The GOSH charity provides vital support and creates magical moments.
Zarwa Kakar, a seven-year-old London resident, lives with geleophysic dysplasia, an extremely rare form of dwarfism impacting her airway and breathing. She has undergone multiple surgeries for her heart and airway, often spending significant time at Great Ormond Street Hospital (GOSH). Her mother, Fahima, expresses the challenges of her daughter's complex medical needs but finds solace in the hospital's dedicated care.
Despite the ongoing difficulties and the recent referral to palliative care, the family focuses on creating joyful moments for Zarwa, who loves singing, dancing, and Disney. The GOSH charity plays a crucial role in this, ensuring that hospital stays, especially during Christmas, are as comfortable and magical as possible for the children.
Zarwa's experience highlights the profound impact of the GOSH charity, which transforms hospital wards into festive havens with decorations, gifts, and special visits. Fahima remains hopeful for Zarwa's well-being and cherishes the supportive, home-like atmosphere the hospital provides, emphasizing trust in a higher power amidst uncertainty.
