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Girl, 2, Faces Grim Prognosis After Rare Gene Fusion
2 May
Summary
- Two-year-old diagnosed with T lymphoblastic lymphoma leukemia.
- A rare gene fusion means treatments are less effective, with no cure.
- Community support includes raffles and charity events for the family.
A two-year-old girl from Hetton-le-Hole, near Sunderland, faces a devastating prognosis of six to 12 months to live. Initially ill in January with breathing problems, Avarni-Mae was diagnosed with T lymphoblastic lymphoma leukemia after a chest X-ray revealed a shadow. Hopes for a good survival chance were dashed when a rare gene fusion was discovered last week.
This rare gene fusion means that Avarni-Mae's cancer could relapse quickly and aggressively, rendering standard treatments like chemotherapy less effective, with no definitive cure available. Her parents, Chanelle Midgley and Daniel Davis, are not working to spend precious time with their daughter, facing financial strain due to their situation and frequent hospital visits.
The community has shown immense support, organizing fundraisers such as raffles and charity nights to aid the family. While Avarni-Mae's consultant at the Royal Victoria Infirmary in Newcastle is exploring all options, her parents emphasize they are praying for a miracle for their vibrant and energetic child.
