Teenager's Jaw Dislocated: Needs to 'Punch Face' for Relief

Eighteen-year-old Tallulah Robertson, diagnosed with Ehlers-Danlos Syndrome (EDS) at 14, endures hundreds of debilitating joint dislocations annually. These dislocations are so severe they can trigger functional seizures, leading to extreme measures like needing to 'punch herself in the face' to relocate her jaw. She recounts instances where her jaw was left dislocated for extended periods, causing distress during vomiting episodes due to her gastroparesis.

Robertson expresses feeling failed by the NHS, with frequent trips to A&E often resulting in doctors leaving dislocations untreated or stating they will reoccur. Her EDS has caused numerous dislocations of her shoulders, hip, jaw, fibula, and fingers. She spent nearly three months in hospital this year for an undiagnosed hip issue and has experienced recurrent hip dislocations, sometimes having to reset them herself without training.

Furthermore, Tallulah suffers from gastroparesis, leading to frequent vomiting that hinders medication effectiveness, and has been diagnosed with Functional Neurological Disorder (FND), which can cause seizures that exacerbate dislocations. Her education has been severely impacted, missing significant college time due to pain and hospitalizations. A GoFundMe has been established to help her seek private medical care.

University Hospitals of Northamptonshire acknowledged awareness of the family's concerns and stated they aim to provide high-quality care, apologizing if the experience fell short of their standards. They are addressing the issues through their Pals and complaints system. The fundraiser has garnered £795 so far, enabling an appointment with an EDS-aware private doctor.