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Viral Fundraiser: Social Media Rallies for Child's Rare Disease
23 Sep
Summary
- A child needs a rare ₹9 crore injection for Spinal Muscular Atrophy.
- Social media influencer and friends led a grassroots fundraising effort.
- Donations were collected through in-person appeals and digital platforms.
A social media influencer, Sunny Mahor (@thodakhalo), and his associates initiated a large-scale fundraising drive for a toddler suffering from Spinal Muscular Atrophy (SMA) Type 1. This severe genetic disorder necessitates a specific injection valued at over ₹9 crore for treatment.
The campaign began with personal appeals to individuals outside AIIMS in south Delhi, evolving to include solicitations after Friday prayers at Jama Masjid. The group utilized T-shirts displaying the child's details and QR codes for easy digital contributions.
Videos and posts shared on social media amplified the appeal, extending its reach beyond physical encounters. This collective effort, driven by individual contributions, highlights a community's dedication to helping the child overcome the severe challenges posed by SMA Type 1.
