West Sussex Kids Denied Selective Mutism Help

Parents in West Sussex are raising concerns about the absence of support for children diagnosed with selective mutism, a severe anxiety disorder that inhibits speech in social situations. Families report being bounced between services without receiving necessary help, impacting their children's education and social development. The situation has led to parents paying significant sums for private assessments and therapy, as formal diagnoses are reportedly only accessible through private means in the region.

A petition has been initiated, calling for West Sussex County Council and the NHS to establish a clear pathway for affected families. This pathway would aim to provide early intervention by trained professionals, addressing the current void in support. Experts describe the situation as a 'postcode lottery,' emphasizing that early diagnosis and intervention are crucial for children with selective mutism, which is often misunderstood as a choice rather than a disorder.

In response, West Sussex County Council and NHS Surrey and Sussex Integrated Care Board stated they are working directly with families to address these concerns and understand their experiences. They are reviewing local guidance and pathways with partners to ensure clearer and more consistent access to support, coordinating with schools and various therapeutic services where necessary.