What is sarcoma cancer according to the Sachin Sarcoma Society?

Sarcoma is a rare, high-grade cancer originating from bones and soft tissues like muscles and nerves.

What are the main challenges faced by sarcoma patients in India?

Patients often face misdiagnosis, delayed treatment, financial toxicity, and emotional distress.

How does the Sachin Sarcoma Society help sarcoma patients?

SSS spreads awareness, builds companionship among patients, and provides support to overcome fear.

Home / Health / Sarcoma Awareness: Bridging Gaps for Rare Cancer Patients

Sarcoma Awareness: Bridging Gaps for Rare Cancer Patients

11 Jan

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Summary

Sarcoma, a rare cancer, affects bone and soft tissues, often presenting as a lump.
The Sachin Sarcoma Society supports over 9,000 patients with awareness and companionship.
Challenges include misdiagnosis, delayed treatment, and financial toxicity for patients.

Sarcoma Awareness: Bridging Gaps for Rare Cancer Patients

Sarcoma, a rare and aggressive cancer originating in bones and soft tissues, remains largely unknown to the public, often surfacing only after a personal diagnosis or that of a loved one. While common cancers like breast and lung gain attention, over 100 types, including sarcoma, struggle for awareness. Its heterogeneity, with around 200 subtypes, complicates diagnosis and treatment, leaving many patients feeling isolated and battling mental health challenges.

Founded in 2018 by a two-time sarcoma survivor, the Sachin Sarcoma Society (SSS) has become a vital support system, enhancing awareness and fostering companionship for over 9,000 patients. SSS addresses critical issues like delayed diagnoses, misdiagnoses, and inappropriate treatments from non-specialists, which can lead to the disease spreading. Early detection and treatment by sarcoma specialists are paramount for saving lives and limbs.