Back Pain Misdiagnosis: Rare Cancer Battle

Jacobey Severns initially experienced lower back pain in October 2025, which he attributed to his physical work. Doctors did not initially deem his worsening pain concerning until early May 2026, when an ambulance was called due to his inability to move. Hospital tests revealed lesions, leading to a Stage 4 metastatic melanoma diagnosis.

Following five months of ineffective immunotherapy and four surgeries, Jacobey's condition persisted. In September 2026, the Severns relocated to California for treatment at Stanford. There, specialists re-evaluated his biopsy results and diagnosed him with a malignant melanotic nerve sheath tumor, an uncommon and aggressive cancer originating in nerve roots.

This rare cancer’s similarity to melanoma had led to the initial incorrect diagnosis and treatment. With the correct diagnosis, Jacobey underwent a cordotomy, which significantly relieved his pain. He has since gained weight and is undergoing mobility exercises, with the family actively seeking a clinical trial for his treatment.