New Autism Diagnosis: Profound Autism for Lifelong Care

Advocates are pushing for a new diagnosis, profound autism, to address the needs of individuals requiring constant and lifelong care. This proposed classification aims to secure essential treatments, support services, and specialized providers for those with continuous high support needs, a group often excluded from current research and clinical attention. The definition of autism spectrum disorder has broadened significantly, encompassing many with lower support needs, and increased awareness has led to more diagnoses, with most cases being relatively mild.

Researchers estimate that approximately a quarter of those with autism spectrum disorder may fit the criteria for profound autism, a term introduced in 2021 by the Lancet Commission. This group typically has a notable level of intellectual disability and communicates nonverbally or with minimal verbal expression. Some in the autism community express concerns that a separate diagnosis could detract from the broader spectrum's needs and individual variations, advocating instead for unified support for all on the spectrum.