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Boy, 6, Needs Kidney Hero: Parents Turn to Social Media
19 Aug
Summary
- A 6-year-old boy has congenital nephrotic syndrome, needing a kidney transplant.
- Parents are using social media to find a live kidney donor.
- Donors must be under 40 and have type O blood for the boy.
Ethan Hackney, a 6-year-old boy from Herring Cove, Nova Scotia, requires a kidney transplant due to congenital nephrotic syndrome, a condition diagnosed shortly after his birth that leads to kidney failure. His parents, Jenny and her husband, discovered in the spring that Ethan's kidney function had significantly declined, necessitating a transplant.
As neither parent was a match, the Hackneys decided to use social media to find a suitable live donor. They are posting daily videos and photos of Ethan playing and enjoying activities, hoping to inspire someone to consider donating. Doctors are looking for an adult donor under 40 with type O blood.
A kidney from a living donor typically lasts 15 to 20 years, compared to 10 to 15 years for a deceased donor's kidney. This longer lifespan is partly due to the ability to ensure a more ideal match. While Ethan could receive a kidney from a deceased donor, his medical team prioritizes a living donation for better long-term outcomes.
The family is navigating Nova Scotia's living donation program, where they remain unaware of how many people have inquired about donating. Their focus remains solely on Ethan's well-being, expressing gratitude for anyone who considers making such a significant sacrifice.
