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Mom's Gut Feeling Saves Toddler From Rare Illness
6 Jan
Summary
- A mother's intuition led to the discovery of congenital hyperinsulinism in her toddler.
- The toddler has two other extremely rare conditions: CLOVES and Sturge-Weber syndromes.
- The child is believed to be the only known person with both CLOVES and Sturge-Weber syndromes.
A Florida mother's unwavering trust in her maternal instincts led to the diagnosis of a rare and life-threatening condition in her young son. Ceeariah Madden noticed a small mark on her 14-month-old son Delswan III's toe, which, despite initial medical assurances, spurred her to seek further examination.
Her insistence on blood work revealed critically low blood sugar levels, prompting a transfer to a children's hospital. There, Delswan was diagnosed with congenital hyperinsulinism, a condition causing severe hypoglycemia. Further testing uncovered two additional extremely rare disorders: CLOVES syndrome and Sturge-Weber syndrome.
Delswan is believed to be the only known case worldwide with both CLOVES and Sturge-Weber syndromes. His treatment is complex, requiring continuous feeding via a tube, as he is unresponsive to standard medications. Madden now advocates for parents to trust their instincts when their child's health is concerned.
