What is Congenital Hyperinsulinism (CHI) found in Delswan Madden?

CHI is a rare genetic condition where the pancreas produces too much insulin, causing dangerously low blood sugar.

Why did doctors initially dismiss Ceeariah Madden's concerns?

Doctors initially believed the bruise and symptoms were minor and did not warrant further testing, as the child appeared otherwise normal.

How is Delswan Madden's CHI condition managed?

Delswan requires continuous 24/7 feeding through a tube to keep his blood sugar stable.

Home / Health / Mom's Gut Feeling Saves Baby from Rare Disease

Mom's Gut Feeling Saves Baby from Rare Disease

18 Jan

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Summary

A mother's intuition led to a life-saving diagnosis for her son.
Doctors initially dismissed concerns about a bruise on the baby's toe.
The infant was diagnosed with Congenital Hyperinsulinism (CHI).

Mom's Gut Feeling Saves Baby from Rare Disease

In September 2024, Ceeariah Madden of Poinciana, Florida, noticed an unusual black and blue bruise on her one-year-old son Delswan's toe. Although initially dismissed as a common childhood mark, Madden's intuition urged her to seek medical attention. At the emergency room, doctors deemed the bruise insignificant, preparing to discharge the child.

However, Madden insisted on blood work, revealing Delswan's dangerously low blood sugar. This prompted further investigation and a transfer to a larger hospital in Orlando. After eight weeks of extensive testing, Delswan was diagnosed with Congenital Hyperinsulinism (CHI), a genetic disorder causing excessive insulin production.

Now two years old, Delswan requires 24/7 feeding via a tube to maintain stable blood sugar. Madden shares her experience on TikTok, empowering other parents to trust their instincts and advocate for answers when they feel something is wrong, emphasizing that parental intuition can be crucial for a child's health.