What is Spinal Muscular Atrophy (SMA) Type 1?

SMA Type 1 is a genetic condition that progressively weakens muscles by damaging motor nerve cells in the spinal cord, leading to muscle wasting and a limited life expectancy if untreated.

What is Jesy Nelson campaigning for regarding SMA?

Jesy Nelson is campaigning for the NHS to expand the standard newborn heel prick test to screen for SMA Type 1, believing early detection can prevent disability.

Has Jesy Nelson's documentary been successful?

Yes, Jesy Nelson's documentary has reached number one on Amazon's viewing charts, a success she celebrated while continuing her advocacy for SMA awareness.

Home / Health / Jesy's Twin Fight: Documentary Hits No.1

Jesy's Twin Fight: Documentary Hits No.1

16 Feb

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Summary

Jesy Nelson's documentary reached number one on Amazon's charts.
Her twin daughters, Story and Ocean, were diagnosed with SMA Type 1.
Jesy is campaigning for expanded newborn screening for SMA.

Jesy's Twin Fight: Documentary Hits No.1

Former Little Mix singer Jesy Nelson recently celebrated a significant career achievement with her documentary reaching the number one spot on Amazon's viewing charts. This success is shared as she continues her dedicated campaign for crucial Spinal Muscular Atrophy (SMA) tests.

Nelson welcomed twin daughters, Ocean Jade and Story Monroe, in May 2025. The girls, born prematurely, were diagnosed with SMA Type 1 last month. SMA is a genetic condition causing progressive muscle weakening, with SMA Type 1 having a life expectancy of two years if untreated.