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Jesy Nelson Shares Emotional Update on Daughters' Health
13 Feb
Summary
- Jesy Nelson's twin daughters were diagnosed with SMA Type 1.
- She advocated for universal newborn screening for SMA.
- The NHS plans large-scale newborn SMA screening trials next year.
Jesy Nelson recently provided an emotional update concerning her twin daughters, Ocean and Story, who were diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a severe genetic condition. This follows a challenging pregnancy complicated by twin-to-twin transfusion syndrome, which resulted in the premature birth of her daughters at 31 weeks.
Appearing on ITV's This Morning to promote her new Prime Video series, 'Jesy Nelson: Life After Little Mix,' Nelson detailed her advocacy efforts. She revealed meeting with the CEO of SMA UK and expressed optimism about progress in expanding newborn screening for SMA. The Department for Health and Social Care has supported improved screening, with the NHS planning large-scale trials next year.
Nelson also reflected on the personal impact of her daughters, stating they have given her purpose and profoundly shaped her life. She also touched upon her current relationships with her former Little Mix bandmates, describing their renewed contact as healing after years apart.
