Mum's FND Battle: Delayed Diagnosis Led to Wheelchair

Sarah Lewis, a 46-year-old mother, now requires a carer and uses a wheelchair due to Functional Neurological Disorder (FND). In early 2021, she began experiencing subtle symptoms such as difficulty swallowing and typing, along with pins and needles and general weakness. Due to her demanding role as a management accountant and responsibilities as a mother, she postponed visiting a doctor.

Her condition worsened significantly by April 2023, marked by severe migraines and mobility issues, prompting her to finally consult a GP. This led to a hospital admission and a subsequent FND diagnosis after ten days. FND affects how the brain and nervous system function, impacting movement, sensation, and speech without structural brain abnormalities.

Lewis believes an earlier diagnosis could have slowed the progression of her FND. Research indicates that early detection is linked to improved long-term outcomes and better engagement with therapies like physiotherapy and CBT. Her experience highlights a common trend, with studies showing many parents prioritize their children's health over their own, potentially leading to more serious conditions.