Home / Health / Woman's Brain to be 'Chopped Out' After Devastating Epilepsy
Woman's Brain to be 'Chopped Out' After Devastating Epilepsy
11 Aug
Summary
- Tilly Jones faces brain surgery with 15 skull screws to remove malfunctioning part.
- Epilepsy diagnosis in 2017 led to loss of career, independence, and memory.
- A GoFundMe supports Tilly's surgery, specialist treatment, and future family planning.
Tilly Jones, a 33-year-old from Rutland, is set to undergo invasive brain surgery to combat severe epilepsy. Diagnosed in April 2017, her life drastically changed from a thriving career in film to frequent, debilitating seizures. She has experienced episodes in public, on film sets, and even on dates, leading to social isolation and a loss of independence.
Her condition has resulted in significant memory loss, with Tilly unable to recall important family events. This "invisible illness" has made her unemployable, forcing her to rely on benefits. Despite the fear and the drastic nature of the upcoming surgery, which involves drilling 15 screws into her skull and removing a portion of her brain, Tilly is hopeful for a seizure-free future.
The surgery, potentially delayed until 2027 due to equipment availability, has prompted a friend to launch a GoFundMe campaign. This initiative aims to support Tilly's specialist treatment, therapeutic needs, daily living assistance, and future family planning, including egg freezing.
