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Endometriosis: Diagnosis Delays Hit New High
8 Apr
Summary
- Diagnosis delays for endometriosis now average over nine years.
- Some doctors mistake endometriosis symptoms for IBS or stress.
- Increased awareness and self-advocacy are urged for patients.
The journey to an endometriosis diagnosis is becoming increasingly protracted, with new figures revealing an average delay of nine years and four months. This represents an increase from previous years, highlighting a growing crisis in timely diagnosis.
Many individuals, including Jade Boden-de Mel and Emily Knell, have shared harrowing experiences where their severe symptoms were initially misdiagnosed. Boden-de Mel's "unbearable" pain at 17 was managed with the contraceptive pill, and a formal diagnosis only came four years later. Similarly, Emily Knell faced years of debilitating pain, with doctors suggesting other causes before endometriosis was identified through surgery.
Medical professionals acknowledge that symptoms are often overlooked or attributed to common issues like stress or period pain. Consulting gynaecologist Ahmed El Gohari emphasizes the need for greater awareness and encourages patients to actively seek specialist referrals. He notes that while attitudes are slowly changing, many symptoms still go unaddressed.
The prolonged diagnostic period can lead to significant physical and emotional distress for affected individuals. Experts suggest that increased self-advocacy and a greater understanding of the condition within the medical community are crucial steps toward improving the situation for those suffering from endometriosis.