Home / Health / ALS Warrior Brooke Eby Dies at 37, Leaves Legacy
ALS Warrior Brooke Eby Dies at 37, Leaves Legacy
2 Oct
Summary
- Brooke Eby, 37, passed away after a battle with ALS.
- She founded ALStogether, an online community for ALS patients.
- Eby received the Advocate of the Year Award in June 2026.
Brooke Eby, a passionate advocate for ALS awareness and a social media personality, passed away at the age of 37. Diagnosed with amyotrophic lateral sclerosis (ALS) in 2022, Eby gained recognition for her honest and often humorous updates about living with the rare neurological disease. Her candid sharing brought much-needed visibility to ALS.
Eby founded ALStogether, an online community on Slack designed to connect individuals impacted by ALS, enabling them to share experiences and seek support. The ALS Network integrated this platform in 2026 to broaden its reach.
In June 2026, Eby was honored with the Dean and Kathleen Rasmussen Advocate of the Year Award by the ALS Network for her significant contributions. "I didn't choose ALS, but I did choose to get loud, and be irreverent about it," Eby stated upon receiving the award, emphasizing her commitment to advocacy.
The ALS Network highlighted Eby's profound impact, noting that she not only changed public perception of ALS but also created a vital space for connection and belonging among those affected by the disease. Her legacy is one of community building and inspiring change.
