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Parents Fight for Life-Saving Drug for Baby
4 Feb
Summary
- 14-month-old Melody needs £20,000-a-month cancer drug.
- Drug is a menin inhibitor approved in the US, not UK.
- Family has raised nearly £50,000 for the treatment.
A 14-month-old girl, Melody Hewitt-Aggett, has been diagnosed with an aggressive form of blood cancer. Her parents have been informed that a groundbreaking drug, Revuforj, could save her life, but it comes with a substantial cost.
The drug, a menin inhibitor, is approved in the US but not yet in the UK. It is estimated to cost the family approximately £500,000 over two years, with monthly expenses reaching £20,000. Melody's consultant has requested approval for its import, potentially making her the first UK patient to receive this treatment.
Melody's parents, Rachel-Elizabeth and Kevin, have already raised nearly £50,000 towards the goal. They discovered the drug through their own research, as Melody's condition has not responded to conventional treatments like chemotherapy and a bone marrow transplant. Doctors have indicated that Melody needs the treatment as soon as possible to survive.
