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ALS Champion Walks for Daughter's Future
23 Jun
Summary
- Lourdes Machado, diagnosed with ALS in May 2025, leads the Walk to Defeat ALS.
- Her mother, Marianela Perez, provides unwavering support and care.
- Research partnership with the University of Miami shows encouraging progress.

Lourdes Machado, diagnosed with Amyotrophic Lateral Sclerosis (ALS) in May 2025, is bravely leading the charge as this year's Champion for the Walk to Defeat ALS. She participates with the fervent hope of spending more time with her daughter.
Machado's mother, Marianela Perez, has been a steadfast pillar of support, embracing her role as a caregiver with unconditional love. Perez expressed immense pride in her daughter's resilience.
The ALS Association is actively supporting families like Machado's and investing in critical research. Through a partnership with the University of Miami, scientists are observing promising advancements in genetic therapies.
Dr. Nathan Carberry of the University of Miami described the progress as groundbreaking, akin to the moon landing, showing a significant impact on neurodegenerative diseases. This offers a tangible sense of hope for those affected by ALS.
All proceeds from the Walk to Defeat ALS are retained within Florida, providing vital resources, support, and care to local families. The ALS Association accepts support throughout the year to continue its mission.