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4-Year-Old Fights Rare 'Childhood Dementia' in Race Against Time
17 Nov
Summary
- Tate, 4, diagnosed with Sanfilippo Syndrome, a rare genetic disorder
- Causes developmental regression and premature death, with no cure
- Mother Tammy McDaid raising funds for experimental treatment to slow progression
In November 2025, a 4-year-old boy named Tate was diagnosed with a rare and devastating genetic disorder known as Sanfilippo Syndrome, often referred to as "childhood dementia." Tate's mother, Tammy McDaid, from Swansea, Wales, initially suspected something was wrong when Tate was diagnosed with autism at age 2, but further testing in March 2024 revealed the true nature of his condition.
Sanfilippo Syndrome is a genetic disorder that primarily impacts the central nervous system, causing cognitive, behavioral, and physical symptoms that lead to premature death. Children with the Type A form of the disease, which Tate has, typically have a life expectancy of just 11 to 19 years. As McDaid poignantly stated, "My little boy has never spoken a word, and now I know I will never get to hear his voice."
Determined to give Tate as much time as possible, McDaid is now racing against the clock to secure experimental treatment for her son. She has established a GoFundMe campaign to cover the costs of these potential therapies, which could help slow the regression of Tate's mobility and allow him to continue enjoying activities like climbing and running for as long as possible. While there is no cure for Sanfilippo Syndrome, McDaid remains hopeful that these treatments can provide Tate with more precious time.
Despite the devastating diagnosis, McDaid remains deeply proud of her son, cherishing the hugs and kisses he can still give. As she poignantly stated, "Even though he can't talk, he hugs and kisses me."
