Sibling Duo Creates Boundary-Breaking Production Tailored for Sister with Disabilities

Three years ago, Flo, the younger sister of 35-year-old Rachel, who has learning disabilities, created a unique variety show called "Perfect Show for Rachel." The production, which is now heading out on tour, is designed entirely around Rachel's preferences, from her love of Kylie Minogue and fart jokes to her desire to be in total control of the onstage action.

During the shows, Rachel sits at a custom-built tech desk, using 39 big buttons to choose the silly skits, games, songs, and lighting changes that will happen next. Her mother, Wendy, assists her at the desk, sometimes even being hurled into the air for a "Dirty Dancing" lift. The cast of 13 performers must be prepared for anything, as Rachel often stops scenes midway or replays songs multiple times if she finds them funny.

The show's creation process has been focused on exploring different forms of communication to ensure Rachel feels understood and listened to. Flo and the team have worked closely with performer Lee Simpson to develop practices that "say yes to what Rachel gives us" and assume it is "perfect or wise or clever." This approach has enabled Rachel to be firmly in charge, making more decisions about her life and starting more conversations.

While the show has received rave reviews and awards, its true success lies in the impact it has had on Rachel, her family, and the audiences. Rachel's language has expanded, and she is more confident networking with audience members who now have new ways to connect with her. The production has also inspired a project at Rachel's care home, allowing other residents to try out her role as director.

As arts funding for disability-focused work continues to be squeezed, Flo acknowledges the challenges of staging a production like this. But she remains unwavering in her commitment, stating, "I don't regret a single penny of it." The "Perfect Show for Rachel" stands as a testament to the power of inclusion, creativity, and centering the experiences of those with disabilities.