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Pearl Jam's Vedder Funds Rare Disease Cure Documentary
16 Jan
Summary
- Eddie Vedder funds research for Epidermolysis Bullosa (EB), a rare genetic skin disease.
- Netflix will premiere his documentary, 'Matter of Time,' on February 9.
- He co-founded EB Research Partnership to find treatments and cures for the disease.
Pearl Jam lead singer Eddie Vedder has championed the cause of finding a cure for Epidermolysis Bullosa (EB), a rare genetic skin condition. Netflix is set to release his documentary, 'Matter of Time,' on February 9, which chronicles his efforts to raise awareness and funds.
The documentary weaves together footage from Vedder's sold-out solo concerts in Seattle, held in October 2023, with compelling narratives from researchers, families, and individuals affected by EB. This film highlights the work of the EB Research Partnership, a non-profit co-founded by Vedder and his wife Jill in 2010.
Directed by Matt Finlin, 'Matter of Time' previously garnered awards at film festivals, including Best Feature Music Documentary at the Nashville Film Festival. The film is presented as a movement aiming to reshape how rare diseases are cured, showcasing the collaborative power of patients, scientists, artists, and businesses.
