What is Chris Hunt-Skelley's diagnosis?

Chris Hunt-Skelley was diagnosed with oculocutaneous albinism type 2 and Bell's phenomenon.

What are the communication methods used by the Hunt-Skelley siblings?

The Hunt-Skelley siblings use tactile signals, developed from visually impaired judo rules, to communicate during their marathon training and races.

What charity are Chris and Hannah Hunt-Skelley supporting?

Chris and Hannah Hunt-Skelley are running to support Fight For Sight, a charity that funds medical research into the diagnosis and treatment of eye diseases.

Home / Lifestyle / Brother Guides Visually Impaired Paralympian

Brother Guides Visually Impaired Paralympian

18 Apr

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Summary

Brother guides visually impaired sibling in London Marathon.
Paralympic judo champion Chris Hunt-Skelley trains for marathon.
Family navigates vision and hearing impairments together.

Brother Guides Visually Impaired Paralympian

Siblings Chris and Hannah Hunt-Skelley are preparing for the upcoming London Marathon, with Hannah acting as guide runner for her visually impaired brother. Chris, a decorated Paralympic judo athlete with a gold medal from Tokyo 2020 and a bronze from Paris 2024, is also hearing impaired. He was diagnosed with oculocutaneous albinism, a rare genetic condition, after a protracted and difficult diagnostic process in the UK.

His journey included significant misdiagnoses, leading to mental health struggles and PTSD. Judo provided a crucial lifeline, enabling him to adapt and excel in competition despite light sensitivity and visual impairment. A specialized medical team in Boston eventually provided the correct diagnosis, offering Chris a path forward.