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Dad Battling ALS Dances Daughter Down Aisle
26 Jun
Summary
- Seth Valentine walked his daughter down the aisle 16 years after ALS diagnosis.
- He used a custom-designed "wheel-bed" for the father-daughter dance.
- The family started a nonprofit called ALSCrowd to aid ALS families.
Seth Valentine, diagnosed with Amyotrophic Lateral Sclerosis (ALS) when his daughter Ellie was seven, defied a grim prognosis to witness her wedding.
Despite a life expectancy of only two to five years, Seth has lived for sixteen years post-diagnosis. He was carried to the aisle by groomsmen, and Ellie placed her bouquet in his hands before pushing him down the aisle.
The emotional father-daughter dance featured Seth in a custom "wheel-bed," a device he helped design to maintain mobility. They danced to the Jonas Brothers' song "Little Bird," a personal choice reflecting Seth's protective love for Ellie.
Valentine's family, having adapted to his condition, has lived adventurously, even starting the nonprofit ALSCrowd. This organization aims to provide support to families impacted by ALS, inspired by their own journey.
