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Boy Runs for Sister Lost to Rare Illness
5 Dec, 2025
Summary
- A six-year-old boy is participating in a charity run to honor his baby sister.
- His sister died at Rainbows Hospice after being diagnosed with neonatal epilepsy.
- The hospice provided a peaceful end-of-life care experience for the family.
A six-year-old boy, Maxwell Appleyard, is bravely participating in the Loughborough Santa Run to honor his late baby sister, Lily. He is raising money for Rainbows Hospice, a place deeply significant to his family.
Lily was diagnosed with neonatal epilepsy and, despite an initial two-year prognosis, her health declined rapidly. She was moved to intensive care before entering end-of-life care at Rainbows Hospice, where she passed away at only six weeks old in 2022.
Their mother described the hospice as a place where Lily was free from medical equipment and where Maxwell could finally hold his sister. The charity run is a meaningful tribute to Lily and a way to support the hospice.
