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Integrated Thalassemia Care: A New Ecosystem
13 Apr
Summary
- Event brought together patients, doctors, and advocates.
- Focus on integrated diagnostics, treatment, and counseling.
- Bone marrow transplant highlighted as a curative option.
On March 22, 2026, Manipal Hospital Yelahanka initiated a significant patient-centric program titled 'Building an Ecosystem of Thalassemia Care.' This event, in partnership with the Thalassemia and Sickle Cell Society of Bangalore, aimed to create a comprehensive support system for thalassemia patients.
The program featured a multidisciplinary team of doctors and experts who led scientific sessions on prevention, management, and curative care. Emphasis was placed on integrated diagnostics, treatment planning, and counseling to reduce the burden on families and make care more accessible.
Dr. Chetan Ginigeri stated the goal was coordinated and humane care, ensuring no patient felt alone. Dr. Aarthi N detailed the comprehensive care platform, including clinical evaluations and advanced imaging, focusing on continuity and reassurance for families.
The initiative underscored a shift towards cohesive, patient-centric care. Dr. Sagar Bhattad highlighted bone marrow transplantation as a definitive cure, stressing the importance of early diagnosis and referral. Dr. Vinay Munikoty added that BMT offers a transformative chance for cure with improving outcomes.
Day-to-day management discussions led by Dr. Ramitha Bhat focused on essential regular blood transfusions and iron chelation therapy, aiming to empower families with knowledge. Dr. Deepa Bhat emphasized prevention through awareness of carrier status and genetic counseling.
The program provided extensive patient support, including free HLA typing, subsidized MRI T2* scans, comprehensive investigations, UDID registration assistance, and advocacy for PWD rights in Karnataka. This initiative marks a commitment to structured and inclusive thalassemia care.
