What is Stevens-Johnson Syndrome (SJS) and what triggers it in Emily Richardson?

SJS is a rare, severe skin reaction characterized by painful blisters. While often triggered by medication or infection, Emily Richardson's case is uniquely triggered by sunlight.

How does Emily Richardson cope with her rare sun allergy?

Emily Richardson must wear full UV-protective clothing head-to-toe when going outside, as even 30 seconds of sun exposure can cause a severe reaction.

Why is Emily Richardson's condition referred to as a 'vampire' allergy?

Her condition is called a 'vampire' allergy because she must avoid sunlight entirely, similar to a vampire, to prevent severe, painful skin reactions and hospitalization.

Home / Health / Woman Hospitalized by Sun: A Rare 'Vampire' Allergy

Woman Hospitalized by Sun: A Rare 'Vampire' Allergy

20 Dec

•

Summary

She has a rare condition triggered by sun exposure, requiring hospitalization.
Doctors misdiagnosed her for years before confirming Stevens-Johnson Syndrome (SJS).
She avoids sun exposure, dressing head-to-toe in protective gear.

Woman Hospitalized by Sun: A Rare 'Vampire' Allergy

Emily Richardson, 36, has a rare and severe allergy to sunlight that triggers Stevens-Johnson Syndrome (SJS), a condition causing painful skin blisters and shedding. This 'vampire' allergy, which has caused her immense suffering, was misdiagnosed for years, with doctors initially attributing her symptoms to herpes.

Her first reaction occurred at one year old, and subsequent episodes at ages 13 and 27 were similarly misdiagnosed. Since contracting COVID in 2021, Richardson has been hospitalized four times due to SJS. She believes her immune system has been significantly compromised by these recurrent reactions.

To avoid hospitalization, Richardson must meticulously protect herself from UV exposure, wearing full coverage clothing even for brief outdoor excursions. She is now using TikTok to educate others about SJS and her ongoing fight for medical recognition and support.