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India's Rare Disease Heroes Honored
20 Jun
Summary
- Rare Star Awards celebrated rare disease community contributions.
- Bengaluru hosted the third annual ORDI event.
- Numerous challenges persist for rare disease patients in India.
The Organisation for Rare Diseases India (ORDI) hosted its third annual Rare Star Awards in Bengaluru on Saturday. This event recognized the remarkable contributions of patients, caregivers, healthcare professionals, researchers, and advocacy groups within the rare disease community.
The awards celebrated efforts in advocacy, caregiving, research, medical care, innovation, and community support. Notable recipients included Vishaka B, Balajepalli Kavya Poornima, and Ruchi Pratap as role models, Kalamma for caregiving, and Vykuntaraju K.N. for medical excellence.
Anshu Kapoor received the volunteer award, Dr. Sheetal Ramesh Mhamunkar was honored for research, and Seba P.A. was recognized as an advocacy leader. The ALS Care and Support Foundation won for patient advocacy, Nadir Aman for genetic counseling, and Peptris for health innovation.
Pharmed received the CSR Partner Rare Award. Winners were chosen by a jury based on nominations reflecting resilience, awareness generation, innovation, and community impact. The event underscored the significant challenges facing an estimated 70 million rare disease patients in India.
