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Nursery Climbs Mountains for Girl with Rare Brain Disease
10 Jun
Summary
- A nursery hosted a fundraiser to support a four-year-old girl with Batten disease.
- Staff members completed a Three Peaks Challenge on treadmills for the cause.
- Batten disease is a rare, incurable, and terminal illness affecting the nervous system.
A nursery in Christchurch, Dorset, has organized a significant fundraiser to support Teraysa, a four-year-old girl diagnosed with Batten disease in December 2024. Staff members participated in a Three Peaks Challenge, completing the climbs on treadmills to help fund necessary equipment for Teraysa.
Batten disease is a rare and incurable neurodegenerative illness, affecting approximately 40 children in the UK. It is terminal and characterized by symptoms such as seizures, visual impairment, and mobility loss. The life expectancy for most patients is between 10 and 12 years.
Teraysa's mother, Stacey, shared that her daughter's condition has been worsening, with a noticeable decline in core strength. Teraysa now uses a feeding chair and a walking frame. Her parents and the nursery staff are focused on creating memorable experiences for Teraysa while she is able to enjoy them, before the progression of her dementia.
Participant Sally Hobbs highlighted the immense costs associated with meeting Teraysa's needs and emphasized that the funds raised would directly contribute to the family's requirements. The challenge, completed over two days, served as a symbolic representation of the daily struggles faced by families managing such severe conditions.
