Home / Health / Dad's Promise Fuels Rare Disease Research
Dad's Promise Fuels Rare Disease Research
7 Sep
Summary
- Family vowed to fund research for rare paediatric mitochondrial disease.
- Noah Jordan Foundation raised over £500,000 in two years.
- Research PhD and hospice support funded by foundation's donations.
The Noah Jordan Foundation has achieved a remarkable milestone, raising over £500,000 in just two years. This significant funding was initiated by the grieving family of Noah Jordan, who tragically passed away at nine months old in 2024 from Alpers-Huttenlocher Syndrome. This rare paediatric mitochondrial disease currently has no known treatment or cure, a reality his father, Ben, found unacceptable.
Driven by a promise to his son, Ben Jordan committed to making a lasting impact on diseases like the one that affected Noah. The funds raised by the foundation are making this promise a reality. A three-year medical research PhD is now underway, dedicated to finding answers for such devastating conditions. Additionally, the foundation has provided vital support to the hospice where Noah spent his final days.
