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Teen's Tumors Lead to Deafness, Inspiring Advocacy
19 Mar
Summary
- Diagnosed with neurofibromatosis type 2 at 16, leading to tumors.
- Suffered permanent hearing loss after brain surgery in March 2022.
- Now advocates for children with NF2, aiming to preserve their childhoods.
McKinnon Galloway was diagnosed with neurofibromatosis type 2 (NF2) at age 16, a genetic disorder causing tumors to grow on nerves. A head injury during a volleyball match led to an MRI revealing tumors that doctors predicted would cause complete deafness by her high school graduation.
Her condition necessitated multiple brain surgeries to manage tumor growth. This challenging period significantly impacted her family, with her father's struggles with alcohol relapse linked to her health. He died by suicide when Galloway was 25.
Her mother, Tracy, became a driving force in fundraising for the Children's Tumor Foundation, significantly supporting Galloway. In early 2022, while on vacation, Galloway experienced sudden and complete deafness, which was partially restored by medication.
However, following a 10-hour brain surgery in March 2022, her hearing was permanently lost. After a period of isolation, Galloway embraced assistive technology and is now a dedicated advocate for others diagnosed with NF2.
She emphasizes the importance of preserving childhoods for children with NF2, stating they deserve experiences beyond hospitals. Despite living with 13 tumors in various parts of her body, Galloway expresses gratitude for her progress, viewing herself as lucky despite the ongoing challenges.
