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Mom's Instinct Uncovers Rare Diagnosis
18 Jul
Summary
- Mother's gut feeling revealed son's microcephaly after birth.
- Merritt suffers 10-15 daily seizures, impacting development.
- Family shares journey online to build community and support.
Vanessa Schreckengast experienced immense relief upon the birth of her youngest son, Merritt, after a closely monitored pregnancy. However, a mother's intuition soon alerted her that something was amiss, as Merritt's head appeared disproportionately small. Despite initial medical assessments suggesting no concern for microcephaly, a later observation of his sister's baby sparked a profound realization.
Merritt was diagnosed with microcephaly and a simplified gyral pattern, a brain abnormality. This condition results in varying developmental challenges. Merritt experiences between 10 to 15 seizures daily, which impede his ability to learn and retain skills. He also has Cerebral Visual Impairment and hearing loss.
Schreckengast, formerly a full-time teacher, now dedicates her time to Merritt's care and therapies. Doctors have cautioned about the possibility of Merritt not living beyond age five. The family finds strength and community by sharing Merritt's journey on TikTok, aiming to advocate for his well-being and help him live a fulfilling life.
