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23-Year Health Battle: Lyme Disease Finally Diagnosed
20 Apr
Summary
- Alopecia at 19 triggered two decades of chronic, misdiagnosed health issues.
- Symptoms included gut problems, exhaustion, and neurological disruptions.
- Lyme disease diagnosis came at age 40 after a ruptured ovarian cyst incident.

Nerida Mills experienced the first signs of illness at 19 with hair loss, a symptom that preceded over two decades of undiagnosed health problems. She endured a range of issues including chronic gut problems, constant exhaustion, hormonal fluctuations, and neurological disruptions like hand numbness, which doctors frequently attributed to stress.
Despite seeking numerous medical opinions, her symptoms were consistently dismissed or misdiagnosed, leading to significant self-doubt and a loss of trust in the healthcare system. Her condition worsened over time, at one point confining her to a wheelchair.
A severe episode in 2021 involving a ruptured ovarian cyst and internal bleeding, which she nearly died from, was a crucial catalyst. This event prompted further investigation, leading to the eventual diagnosis of Lyme disease at age 40.
Reflecting on her past, Nerida believes her symptoms began after spending extensive time outdoors working with horses and hiking in Santa Cruz, California, prior to her illness. She notes the controversy surrounding Lyme disease in Australia, where official health authorities do not recognize the bacteria as endemic locally.
Her treatment journey was self-directed and costly, spanning several years. Gradually, her health improved, and she now believes she is cured, experiencing no detectable signs of the infection. Nerida has since shared her story through a TEDx talk and a book, "Life as Medicine," and recently completed a challenging open-water swim, symbolizing her reclamation of health.