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Girl's Death Fuels Law Change Plea
1 Jan
Summary
- Two-year-old Lyla Story died from undiagnosed type 1 diabetes.
- Her family is campaigning for 'Lyla's Law' for routine testing.
- A doctor diagnosed tonsillitis hours before her death.
A grieving father is channeling his heartbreak into a legislative campaign following the tragic death of his two-year-old daughter, Lyla Story. Lyla passed away in May 2025 from undiagnosed type 1 diabetes, a condition that went unnoticed despite a doctor's visit just hours prior.
An inquest revealed that Lyla's mother had taken her to the doctor, where she was diagnosed with acute tonsillitis. Tragically, her condition worsened rapidly, leading to her death within 24 hours. Her father, John Story, is now advocating for "Lyla's Law."
This proposed law aims to introduce routine testing for type 1 diabetes symptoms in children. John Story sees this as a vital step to honor his daughter's memory and prevent other families from experiencing similar devastating losses. The NHS has offered its condolences, stating healthcare professionals adhere to established clinical guidelines.
