What is the KARE portal in Kerala?

The KARE portal is a comprehensive digital platform launched by Kerala's Health Department to identify, track, and coordinate the treatment of rare diseases across the state.

How does the KARE portal help patients with rare diseases?

The portal centralizes patient registration, monitors treatment and follow-up, and establishes referral links to experts and treatment centers, ensuring efficient and timely care from early detection to long-term support.

What are the key goals of Kerala's KARE initiative?

The key goals include early identification and scientific tracking of rare diseases, assessing their prevalence, identifying region-specific diseases, and providing comprehensive care, including free treatment for children.

Home / Health / Kerala's New Digital Platform for Rare Disease Care

Kerala's New Digital Platform for Rare Disease Care

13 Mar

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Summary

A digital platform tracks and coordinates rare disease treatment.
The KARE portal aids families with rare diseases for efficient care.
The initiative aims for early identification and scientific tracking of diseases.

Kerala's New Digital Platform for Rare Disease Care

Kerala's Health Department has introduced a comprehensive digital platform to facilitate the identification and tracking of rare diseases, ensuring coordinated treatment for affected individuals. Launched in 2024, the KARE (Kerala United Against Rare Diseases) portal aims to streamline public health system efforts in managing rare diseases.

The KARE portal functions as a centralized digital registry for individuals with confirmed or suspected rare diseases. It will monitor their treatment and follow-up, establishing essential referral links with various treatment centers and experts. This system is designed to address challenges like diagnostic delays and high treatment costs faced by patient families.