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Grieving Mom Fights for Brain Tumor Research Funding
28 May
Summary
- A mother is campaigning after her daughter's death from a brain tumor.
- The 11-year-old was diagnosed with an aggressive brain tumor.
- The family is urging for better research funding for childhood cancers.

A mother is passionately campaigning for improved research funding after her young daughter's sudden death. Alicia-Adele Axiak, an 11-year-old from Caerphilly, was diagnosed with diffuse midline glioma, a type of cancerous brain tumor, in April 2025.
Her mother, Amanda, shared that their lives were "ripped apart entirely" when the diagnosis came just 13 days before Alicia-Adele's passing. The family is now urging for significant changes to research funding to prevent future tragedies.
The Welsh government has stated that its new cancer plan will emphasize research, innovation, and access to clinical trials.