Brothers Race Against Time Facing Inherited Dementia Gene

Jordan Adams faces a heartbreaking reality: he anticipates only ten years until the onset of frontotemporal dementia (FTD), a rare and aggressive form of dementia. He and his younger brother, Cian, have inherited the gene responsible for FTD from their late mother, Geraldine, who passed away in 2016 at 53.

Geraldine was diagnosed with FTD in 2010 at 47, a disease that gradually diminished her speech, sense of humour, and motor skills. Following genetic testing after her death, Jordan learned he carries the same gene, predicting symptoms to appear around the same age his mother did. Cian also carries the gene, while their sister Kennedy does not.

Now known as 'the FTD brothers' on social media, Jordan and Cian are dedicated to raising awareness and funds. Their ambitious goal is to raise £1 million in their lifetimes for the Alzheimer Society of Ireland and their FTD Brothers Foundation.

Jordan's immediate challenge involves running 33 marathons in 33 days, starting with the London Marathon on April 26th, where he plans to carry a fridge. This initiative aims to raise £100,000. Jordan expressed his fears about losing recognition of his wife and the difficult prospect of his family witnessing their deterioration and attending both brothers' funerals.