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Brothers Run 32 Marathons After FTD Gene Discovery
21 Apr
Summary
- Two brothers inherited a gene causing frontotemporal dementia.
- They are running 32 marathons in 32 days across Ireland.
- They aim to raise funds for FTD research and awareness.
Jordan and Cian Adams, known as the FTD Brothers, are undertaking a remarkable feat of endurance to combat frontotemporal dementia (FTD). Both brothers carry a gene mutation that gives them a 99.9% chance of developing FTD, a condition that tragically claimed their mother's life at age 52. Their mother was diagnosed at 47, and the family lost a total of 12 relatives to the same form of dementia.
The brothers' mission involves running 32 marathons across Ireland's 32 counties within 32 days. This challenge follows Jordan's participation in the London Marathon, where he ran with a 25kg fridge on his back to draw attention to their cause. Thus far, they have raised over £50,000 towards their £100,000 goal.
Their efforts are fueled by a desire to find a cure for FTD or, at minimum, to improve the lives of those living with the condition. The FTD Brothers have also been featured on the BBC program Extraordinary Portraits, highlighting their story and the emotional impact of dementia on families.
