Home / Health / Family's Fundraiser Fuels Lewy Body Dementia Hope
Family's Fundraiser Fuels Lewy Body Dementia Hope
28 Jun
Summary
- Family raises nearly $189,000 for dementia research.
- New 5K event aims to raise funds for biomarker studies.
- Lewy body dementia is often misdiagnosed, mimicking Parkinson's.
When Barry Pfaff was diagnosed with Lewy body dementia in 2010, his family embarked on a journey to support research and awareness. The disease, often misdiagnosed, presents symptoms like memory loss, hallucinations, and physical stiffness.
In honor of Barry, who passed away in 2014, his family established the nonprofit You Follow Me and a dedicated research fund. They have since raised nearly $189,000 through annual fundraising events, aiming to reach $200,000 by the end of 2026. These funds directly support dementia research at Ohio State University.
The family is organizing a new Laps for Lewy 5K Run/Walk on August 16 at the Westerville Sports Complex. Proceeds will fund research into new biomarkers for early disease identification, potentially through blood, spinal fluid, or skin biopsies.
While significant progress is being made in symptom management, researchers are actively pursuing disease-modifying treatments. The Pfaff family's efforts are contributing to these vital advancements, offering hope for improved outcomes and family support.
