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Carer's Fight: 'Broken System' Left Jim Waiting
28 Apr
Summary
- Jim was diagnosed with Parkinson's at 44 and died after finally receiving care.
- England's councils face a backlog of 372,000 adults needing social care.
- Kirsty fought for 11 years for adequate support for her husband Jim.

Jim was diagnosed with Parkinson's disease at 44, prompting his wife Kirsty to become his unpaid carer for the next 11 years. Their journey underscored the challenges of navigating England's adult social care system, with Kirsty recounting an arduous fight for adequate support as Jim's health deteriorated. Jim passed away in December 2025, only a week after finally receiving full-time care.
Analysis of government figures reveals that adult social care constituted approximately 40% of net service spending by English councils in 2024-25. Nevertheless, an estimated 372,000 adults were awaiting access to social care services by March 31, 2025, indicating persistent demand pressures. The Association of Directors of Adult Social Services (ADASS) noted that while waiting lists have reduced from a post-Covid peak, it's uncertain if everyone receives the necessary care.