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Families Hail 'Life-Changing' Brain Tumor Aftercare Program
19 Feb
Summary
- A new cognitive rehabilitation program helps children after brain cancer treatment.
- The program addresses memory, attention, and fatigue challenges faced by survivors.
- Family feedback describes the intervention as 'life-changing' and supportive.
A new cognitive rehabilitation program, developed at Great Ormond Street Hospital (Gosh), is offering vital support to children recovering from brain cancer treatment. This initiative addresses a significant gap in NHS care by focusing on cognitive challenges such as memory issues, attention deficits, and cognitive fatigue that often persist after medical interventions.
One family described the program as 'life-changing,' emphasizing how it has equipped their child and the entire family with techniques to manage post-treatment difficulties effectively. The trial, involving children aged seven to 17, is currently assessing the program's feasibility and acceptability, with options for cognitive rehabilitation alone, with fatigue management, or standard healthcare.
This pioneering study, funded by the National Institute for Health and Care Research and the Life After Cure charity, aims to inform a larger UK-wide trial. Researchers hope to establish national cognitive rehabilitation services, empowering young survivors and their families to improve their quality of life and better navigate the challenges following brain tumor treatment.
