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Boy, 10, Faces Blindness and Deafness by 30
18 Aug
Summary
- A 10-year-old boy was diagnosed with Usher Syndrome type 3.
- The condition causes gradual hearing and vision loss by age 30.
- He faces losing his night and peripheral vision.
In July 2026, Carrie Hauck's son, Emmett, received a life-altering diagnosis of Usher Syndrome type 3. This genetic condition progressively impacts hearing and vision, with severe deterioration expected by age 30.
Emmett, now 10, previously showed no outward signs of his condition until a first-grade hearing test. Despite using hearing aids, the cause remained unknown until genetic testing revealed Usher Syndrome type 3.
Doctors anticipate cochlear implants may be an option for Emmett. He is projected to lose night vision starting around puberty, followed by peripheral vision, drastically narrowing his sight.
While there is no cure, the Hauck family is proactively teaching Emmett sign language and braille. They are also exploring resources and positive examples to help him navigate his future.
Emmett has expressed heartbreaking questions about marriage, his dream of becoming a doctor, and the possibility of driving. His mother, Carrie, is devastated but remains a pillar of strength for him.
Carrie documents their journey on social media to raise awareness. The family also awaits genetic testing results for their three other children, as they each have a 25 percent chance of having Usher Syndrome.
