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Baby Fights Rare Disease After Fever Scare
19 Dec
Summary
- Infant Luca developed a high fever and rash at two weeks old.
- Doctors diagnosed him with rare, life-threatening HLH disorder.
- He is awaiting a crucial bone marrow transplant in early 2026.
A family's joy turned to fear when baby Luca, born healthy in October, developed a high fever and rash at just two weeks old. His parents rushed him to the hospital, where initial concerns of sepsis led to further testing. Doctors eventually diagnosed the infant with Hemophagocytic lymphohistiocytosis (HLH), a rare and life-threatening autoimmune condition.
Luca was transferred to London's Great Ormond Street Hospital for specialized care. He has since undergone intensive treatments, including chemotherapy, as his parents faced the possibility of losing him. Despite the challenges, Luca has remained remarkably cheerful throughout his ordeal.
Now, after weeks of treatment, Luca is approved for a critical bone marrow transplant scheduled for January 26, 2026. While ongoing monitoring and potential long-term effects are expected, this procedure offers significant hope for his future. The family has launched a GoFundMe to cover living expenses while they remain by his side.
