Home / Health / Boy, 13, faces 12 months as rare condition baffles doctors
Boy, 13, faces 12 months as rare condition baffles doctors
12 Nov
Summary
- A 13-year-old boy has been diagnosed with a rare nerve condition.
- His family has spent three years seeking a diagnosis for his declining health.
- Doctors estimate the boy may have only 12 months left to live.
Jude Keil, a 13-year-old boy from Kent, is now under palliative care after a rare nerve condition that has evaded diagnosis for three years. His father, Peter Keil, first observed swallowing difficulties in September 2022. Despite numerous GP visits and tests, a sudden respiratory arrest led to a four-day coma and a permanent non-verbal state.
Over 311 days spent at Ronald McDonald House Evelina in London, the family endured countless tests without a definitive diagnosis for Jude's deteriorating health. He has gone from an active child to being locked-in, requiring constant ventilation.
Recently, doctors have projected that Jude may have only 12 months to live. His family remains dedicated to ensuring he lives fully, emphasizing their reliance on support services like Ronald McDonald House. Peter Keil is sharing their story to raise awareness for the charity.
